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This page provides you with links to related APS / Hughes Syndrome websites. We must stress that we are not responsible for the contents of the pages contained in these external sites. Please contact us if you would like any new websites added.

 


 

http://www.fvleiden.org :- Advice and information on blood clotting disorders

www.invisibledisabilities.org :-The Invisible Disabilities Advocate strives to help friends and family better understand chronic illness and pain, as well as learn how to be a source of encouragement and support. 

APSLUCK@yahoogroups.com :- An on line worldwide support group, where you will find information and support from people with APS/APS & Lupus 

http://hughes-syndrome.healthunlocked.com:- Connect with the Hughes Syndrome Foundation (APS) and people and volunteers affected by or working with Hughes Syndrome (APS)

  • Answers to health questions from patient experts
  • See what other Hughes Syndrome patients are doing and thinking
  • Tools to help you make choices that are right for you

This is a fantastic and informative support group which has now merged with the UPSLUK group.

www.haemochromatosisza.org :- Information, support and advice on Haemochromatosis a blood disorder caused by iron overload

http://www.americanaps.org/ :- A new non-profit organization in the US dedicated to awareness, education, research and support for APS.

www.clotcare.com :- Offers information and resources for patients and health professionals about the optimal use of antithrombotic and anticoagulant therapy.

The WINTER/SPRING 2010 volume of the APS foundation USA quarterly newsletter, "Antiphospho...What??" is available on the following link http://www.apsfa.org/docs/APSFAVol16WinterSpring2010.pdf

The SPRING/SUMMER 2010 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol17SprSum2010.pdf

The SUMMER/FALL 2010 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol18SumFall10.pdf

Some interesting and helpful videos on APS.  http://www.youtube.com/watch?v=V3J8BLkZyhU&feature=related

I am unable to download the newsletters from the APSFA "Antiphospho.....What?..." should you wish to read these interesting and informative newsletters, click on the apsfa foundation link above and you will be able to access their newsletters

 

A helpful site for those with APS and Thrombophilia. Take a look:- http://www.thrombosis-charity.org.uk/old/aboutthrom_thrombophilia_acquired_aps.htm

 

A PubMed site for lupus:   http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001471/

 
 

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Dedicated to the memory of Teresa Forde and Loretta Dow.
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